CANADIAN BLOOD SERVICES recognize Lorna Stevens

CANADIAN BLOOD SERVICES was please to recognize Lorna Stevens for her dedication to the blood system with a plaque and a pen set presented to her in Ottawa.

Her participation on the National Liaison committee distinguished her as someone committed to improving the lives of others.  Lorna was an original member of the CBS National Liaison Committee October 23rd, 2001 and her last meeting was in Ottawa, March 26th, 2012.

LORNA STEVENS  continues her good work as a volunteer representing NSAI with the Canadian Standards Association Technical Committee on Blood and Blood Components formerly known as Health Canada's

Expert Working Group on Blood Standards.

 Should you wish more information or have any questions, please call our toll free # 1-800-6-NEUTRO and leave a message on our answering machine. President Lorna Stevens will return your call.

19th ANNUAL NEUTROPENIA GOLF TOURNAMENT/DINNER

(OR BETTER KNOWN AS BENNY'S TOURNAMENT - THE POOR MAN'S )

 

2012 Neutropenia Golf Tournament update 

MAY 17th, 2012 at the KINGSWOOD, was SOLD OUT.

 

This year’s Golf Tourney was another “hole-in-one” smashing success. There were just under 156 golfers in attendance, the weather was great and turned out to be a beautiful day for all. The dinner format was changed to buffet style, I believe this helped the evening “move along” a little faster. Dr. Jon Gerard was in attendance and gave an inspiring motivational speech. Lots of great prizes were handed out, the live auction created a feeding frenzy of some hot items. Gary Curtis, Director of Golf at the Kingwood Golf & Country Club was honored with a Special plaque to commemorate his overwhelming support and extreme generosity and contributions to make this event a tremendous success year after year.  

 

On behalf of Neutropenia Support Assoc. Inc. I would like to Thank Gary Curtis and his staff at the Kingwood Golf & Country Club for their continued support for once again another extremely successful Golf Tournament. I would also like to thank all the golfers who come out year after year, without you this event would not happen … Thank-you … to all our hole sponsors,  and to every person that contributed to this event.

 

 

 

Thank-you

 

 

Until next year.. 

 

Mike Carlson

Vise-President, Neutropenia Support Association.

  

  

 

An important Message from Our President..  Lorna Stevens

 

Tax deductible receipts will be supplied for HOLE SPONSORSHIP @ $100.00

 DONATIONS ARE ALSO GRATEFULLY RECEIVED  and tax deductible receipts supplied.

The research advancement and knowledge gained about this rare blood disorder since we started in 1989 has truly been amazing.
The failure of chemotherapy treatment without the development of the current cytokine treatment & SCN Canadian participation in the Clinical phase lll trials, lead to  approval and thousands of Canadian lives saved each and every year.
ALL Cancer patients because of the clinical evidence supporting the importance of dose-intensity in cancer chemotherapy have a chance of a higher response rate and greater success.
We remain 100% voluntary and this is our only fundraiser we depend on each year.
We hope we can count on your support.

It is truly amazing when we look back and recognize all the projects we have helped support over the years.
 
Dr. Bonnie Cham and U. of Manitoba Cell Biology, Dr. Melvin Freedman,  and others at Toronto Sick Children's,
a microscope for the Janeway.  Hospital needs from VCR's for the children's wards to Major Medical Journal subscriptions for the library. Now, parking passes distributed by the Child Life Specialist for parents with children in hospital and supporting other needs as recognized by child health programs.
 
As you know the diagnosis of a chronic life -threatening illness creates many challenges.
 
All members of the family experience stress, anxiety  and fear related to illness, treatment and hospitalization.
For parents and caregivers there are additions stressors related to financial concerns.
Often one parent must give up their job for a long period of time to care for their child.
 
In addition to managing their households with less financial resources there are other expenses including daily parking charges and meals for their hospitalized child.
 HOSPITALS DO THEIR VERY BEST, to make meals child-friendly, but children with neutropenia have special requests and good nutritional status is very important in their physical and psychological well-being.
 
The last 2 years we have provided parking passes and assistance of nutritional support for this patient population.
 
Confidentiality is maintained  through the Child Life Specialists that provides on our behalf the support needed to reduce some of the stress associated with these medical challenges.
 
 Our  2012 golf tournament will enable us to once again meet these goals.
 
Thank you!
 
Lorna Stevens on behalf of Neutropenia Support Assoc. Inc.

 

 

2011 Annual Golf Tournament a Huge Succuess!

Our Annual Golf Tournament held at the Kingswood Golf Club, May 19, 2011, was again a huge success with 156 golfers. The day started out looking very Bad as it was cloudy and raining right up until the guy were ready to tee off, but, as luck would have it, it stopped raining and the sun came out, turned out to be a very beautiful day for all the golfers.

After all the golfers were done, we had a very hardy and delicious chicken and ribs dinner, with a great desert, Gary and his staff at the Kingswood were very generous with the each helping, as usual, way too much food! After dinner, the special prizes were handed out and the auction for the Big Items, The ever popular Cement Mixer was again included and was a great Auction Item. An Autographed Hockey Jersey also was a hot Item, bidding for this went extreme with the final bid coming in over $900.00.

After all the formal events were done, Jim and his gang sat down for their usual fun filled guitar playing Karaoke. All in all, It was a great day/evening for everyone. Final amount was $9386.67  The Neutropenia Support Association would like to give a huge "hug" and "hardy" Thank-you to every one involved in this Fantastic Charity event.

Hope to see you all next Year..

Many Thanks..
Mike Carlson
VP/WEB Master.
Neutropenia Support Association

important message from Lorna Stevens

International  Neutropenia researcher, Dr. Christopher Klein was awarded the top recognition at ASH this past December is a really BIG deal and highlights how far NEUTROPENIA has come since we started in 1989.

 

 His discoveries scientifically have contributed to helping the lives of so many with congenital neutropenia.  The William Dameshek Prize was awarded to Dr. Christoph Klein because of his pioneering research into the pathophysiology, the landmark discovery of mutations in HAX1 genes in patients with severe chronic neutropenia ( Kostmann disease) and the discovery of human P14/ROBLD3 deficiency and G6PC3 deficiency, genetic defects that can cause Kostmann syndromes. His contributions identified the genetic basis of several diseases on  the immune system and has had a large impact on the understanding of human blood and the immune system.