2018 MFM patient and family conference

2018 Marrow Failure and Myelodysplasia Patient and Family Conference

By Toronto Hospital For SickKids

Saturday April 14, 2018 - 8:30 a.m. to 5:30 p.m.

2018 MFM Flyer

2018 MFM conference agenda

Click Above Links for Further information




Dr. Laurence ( Larry ) Boxer passed away

The Loss of a True Friend and Hero.

It is with great sadness that We have to convey this News. Our dear friend, highly respected mentor, and our International medical advisor,  Dr. Laurence ( Larry ) Boxer passed away from myeloma yesterday afternoon, Saturday, January 7th, (2017). A sincerely generous and giving man whom will all ALWAYS remember in our hearts with respect and great appreciation. The World has lost a truly amazing man!

Just last month "ASH" awarded him with a very special mentor-ship award in recognition of his incredible accomplishments and valuable contribution.

Larry's funeral service will be Wednesday, January 11th (2017), at 10:30 am at Temple Beth Emeth, 2309 Packard Street, Ann Arbor, Michigan, 48104.  His burial service will follow at Arborcrest Memorial Park, 2521 Glazier Way, Ann Arbor, MI 48105. 

The funeral service will be live streamed and archived by the Ira Kaufman Chapel and available on their web site www.irakaufman.com

Later that afternoon they will be gathering together for Shiva which is a time to share stories and pictures, talk, and gather as a community of family and friends to celebrate a life well lived.  Calling hours will be from 4 pm to 9 pm at our home  at 3869 Waldenwood Drive, Ann Arbor Michigan, 48105 with the Shiva service itself at 7 pm on Wednesday, January 11th. 

Larry took great pleasure in his life as a physician and educator and wanted to continue the tradition of contributing to knowledge.  Those who wish to further honor his memory may contribute to the University of Michigan Laurence A. Boxer, M.D., and Grace Jordison Boxer, M.D., Lectureship in Hematology & Related Blood Diseases which he established.  The mailing address is University of Michigan Office of Development Attn: Mike Hartwell 1000 Oakbrook, Suite 100 Ann Arbor, MI 48104.

We will be sending flowers to the family/funeral on behalf of the Neutropenia Support Association Inc. A generous donation will also be included to the above recipient.


Compassionate Care Parking Pass Project

Thank you's received from ALL hospitals in response to our Compassionate Care Parking Pass Project!  We HOPE to continue it and expand it!

The Neutropenia Support Association Inc. provided $2,128.72 to B.C. Children's Hospital, $1,500. to Cancer Care Manitoba, and $2,000. to Sick Kids to be used for Compassionate Care Parking Passes (CCPPs) to aid families financially with long term stays in hospital as their children deal with the many Congenital  Neutropenia Syndromes including  Cyclic Neutropenia, Severe Congenital Neutropenia &  Kostmann Disease,  Reticular dysgenesis, other forms of Severe Chronic Neutropenia ( SCN), Shwachman-Diamond syndrome, Dyskeratosis congenital, Barth syndrome, Pearson's syndrome, Glycogen storage type 1b, Chediak-Higashi syndrome, Griscelli syndrome, Hermansky-Pudlak syndrome type II, p14 Deficiency, Cartilage-hair hypoplasia. Hyper-IgM syndrome, Schimke immuno-osseous dysplasia, Myelokathexis & WHIM syndrome, Wiskott-Aldrich syndrome.

Also, Autoimmune Neutropenia, Idiopathic Neutropenia, Viral ,Drug-induced Neutropenia. Bone Marrow Transplant recovery, Stem Cell Transplant recovery, including those challenged by Chemotherapy- induced Neutropenia and other rare blood diseases.

For more knowledge on the molecular pathogenesis of severe congenital neutropenia with ANCs below 500/ul and associated with severe systemic bacterial infections from early infancy  please read: A Molecular Classification of Congenital Neutropenia Syndromes  by Dr. Laurence A Boxer and Dr. Peter E. Newburger.

Special THANK YOU to the Grand Court of British Columbia, Order of the Amaranth for their fundraising efforts.  Their total fund raising contribution was provided to the B.C. Children's Hospital.

Special THANK YOU for the generous support of our long standing donors and volunteers contributing since 1989 to NSAI and helping us promote awareness, and support for our many projects over the 25+ years as 100% volunteers.

Hopefully, with your support, we will  continue to offer CCPPs to these and other Canadian Children's Hospitals and Clinics.

PLEASE DONATE!  Tax deductible receipts will be provided. Reg. Charity No. 0948093-11

You can also choose the Neutropenia Support Association Inc. to donate through the United Way.

Kindest regards from The Neutropenia Support Association Inc.

We remain 100% voluntary since 1989.

This e-mail address is being protected from spambots. You need JavaScript enabled to view it.


Third edition of Z902

Third edition of Z902 Blood Standards Now complete


Lorna Stevens, our President was heavily involved with this project from day one. Her comments follow.

Announcement From Jeffrey Kraege

Project Manager, Health Care and Community Safety


CSA Group

I am pleased to report that the third edition of Z902 is now published in both official languages.  Committee member copies of both versions are attached.  Many thanks to everyone for all the time and effort you have contributed to this standard! It has taken awhile, but through this process I think we have developed a strong document.

Special thanks go out to Gilles Delage for his excellent leadership during the development of three editions of Z902.  This was a tremendous task, and he has met every challenge with clear direction, creativity, and insight.

I would also like to extend my appreciation to Héma-Québec for its help in reviewing the final translation and making many improvements.

Best wishes to all for the holidays, and Happy New Year!




From Lorna Stevens:

Finishing off the Z902-15 STANDARDS, a project initially embarked on with the first meeting I attended Dec.1999 in Ottawa after the San Diego ASH Conference, is the icing on the cake!

The many incredible individuals that were involved with this project over the years that I was privileged to know well and respect are too numerous to mention.

The constant was ALWAYS Dr. Gilles Delage!!!

Jeffrey Kraegel said it best. Special thanks go out to Gilles Delage for his excellent leadership during the development of three editions of Z902.  This was a tremendous task, and he met every challenge with clear direction, creativity, and insight.

May 2016 be a safe, healthy &, happy year for all to enjoy!

warmest regards,

Lorna Stevens

President & Co-founder

Neutropenia Support Assoc. Inc.

Remaining a 100% volunteer driven Canadian Charity #0848093-11 since 1989.



CANADIAN BLOOD SERVICES recognize Lorna Stevens

CANADIAN BLOOD SERVICES was please to recognize Lorna Stevens for her dedication to the blood system with a plaque and a pen set presented to her in Ottawa.

Her participation on the National Liaison committee distinguished her as someone committed to improving the lives of others.  Lorna was an original member of the CBS National Liaison Committee October 23rd, 2001 and her last meeting was in Ottawa, March 26th, 2012.

LORNA STEVENS  continues her good work as a volunteer representing NSAI with the Canadian Standards Association Technical Committee on Blood and Blood Components formerly known as Health Canada's

Expert Working Group on Blood Standards.

 Should you wish more information or have any questions, please call our toll free # 1-800-6-NEUTRO and leave a message on our answering machine. President Lorna Stevens will return your call.